On March 4th I was preparing for the Lymphoma Awareness subject for the month of March. I had spent time with many person trying to raise awareness and participation in Be The Match. Be The Match is a registry for persons to become donors for persons willing to donate Stem Cells to persons needing Stem Cell Transplants. I began on my birthday and was assisted by many friends and family around the world to increase donors.
I went to the hospital to began the “mobilization” process (receive chemo therapy and began injections to boost your stem cells so that I could be my own donor. In hours my life took a turn or the worst. I had concern about growth of a particular group of nodes. When I brought these concerns to my oncologist from December to February, I was falsely assured that the Clinical Drug Trial I was participating was working. On March 4 I was told by the Bone Marrow Transplant doctor that my cancer was growing out of control.
My one day visit to prepare for my transplant became a 2 1/2 week stay. I became very ill and unstable. I have no memory of many events. I received chemotherapy for 24 hours a day, steroids and antibiotics around the clock. I did not realize how ill I was.
Surprisingly I was able to donate my own cells, however I will not know until after a PET scan if I will be in remission enough to receive the transplant.
Even after my diagnosis and participation in treatment, I can not over stress how important it is to be you own best advocate. I still have a long road ahead if I am able to receive the transplant. Even in the hospital I can to keep on to of my medical and medications. The healthcare industry is a very SCARY place.
Please learn as much about your body as possible. And if diagnosed with Lymphoma, saturate yourself with knowledge, options, and the best medical professions and facilities. I am Praying for a positive outcome.